Living with dementia
Living with dementia in Nillumbik
As with many communities in Australia, the number of people living with dementia in Nillumbik is increasing.
There are close to half a million Australians with dementia, and in Nillumbik, there are more than 1,000 people with dementia.
This is forecast to increase to 2,734 in less than 30 years (Victoria by local government area (LGA) (dementia.org.au).
Dementia Australia resources
Dementia Australia is the peak body for people impacted by dementia in Australia. It provides trusted information, education and support services, as well as advocacy for positive change.
If you want to find out more about available support, call the National Dementia Helpline on 1800 100 500.
The National Dementia Helpline is a free telephone service that provides information and advice to:
- people living with dementia
- people concerned about changes to memory and thinking
- people living with Mild Cognitive Impairment (MCI)
- family, friends and carers of people living with dementia
- people who work in health and aged care.
In addition to sharing information and advice, the team can also:
- provide emotional support and guidance
- connect you to Dementia Australia and community support services and programs
- discuss government support, including My Aged Care, National Disability Insurance Scheme (NDIS), Carer Gateway and Dementia Behaviour Management Advisory Service (DBMAS).
Support for a person living with dementia
Dementia affects people in different ways.
Each person will find their own approach to managing the changes associated with dementia.
A good place to start is to look at the resources available on Dementia Australia’s website.
Local support groups
The following groups provide support and assistance for people living with dementia.
If you are aware of other groups or organisations who should be listed here, contact our Positive Ageing team at positive.ageing@nillumbik.vic.gov.au.
healthAbility
healthAbility offers several dementia-specific support groups, including weekly centre-based social programs for people living with dementia, and an outing program for people with younger onset dementia.
These programs offer flexible respite options for carers.
917 Main Road Eltham
9430 9100
healthability.org.au
Memory Care Cafes
Nillumbik has three Memory Care Cafes supported by volunteers of the Nillumbik Dementia Friendly Alliance (NDFA) and Carer Gateway.
Memory Care Cafes are social groups aimed at carers and the person they care for (with memory loss, dementia and or mild cognitive impairment). It provides an opportunity to connect with others in a welcoming place.
To read more about Memory Care Cafes, read this article in the Warrandyte Diary, written by a volunteer.
Hurstbridge Memory Care Café
When: every Monday
Time: 1.30pm-3.00pm
Where: Hurstbridge Community Hub, 50 Graysharps Road Hurstbridge
Cost: $5 per session
Eltham Memory Care Café
When: 1st and 3rd Tuesdays of each month
Time: 1.30pm-3pm
Where: Living & Learning Hub, 739 Main Road, Eltham
Cost: $5
Diamond Creek Memory Care Café
When: second and fourth Wednesday of each month
Time: 1.30pm
Where: St John’s Anglican Church Hall, 61 Main St, Diamond Creek
Cost: $5
RSVP (including dietary needs) to Nillumbik Dementia Friendly Alliance on 0437 352 378 or email nillumbikdementiafriendly@gmail.com.
This is an initiative from the members of the Positive Ageing Advisory Committee.
Musical Memories Choir
The dementia REWIRE Musical Memories Choir is a community choir for people living with dementia, their families, and carers.
What is the choir?
The Rewire Musical Memories Choir for Nillumbik is a THERAPEUTIC COMMUNITY CHOIR that aims to support residents living with dementia, their families, and carers to continue to be vibrant and active members of their communities and to provide opportunities to stay socially connected.
Cost
There is a term fee of $110 per person attending. However, alternative arrangements can be discussed in special circumstances. The cost of running the choir is subsidised through donations – we welcome any suggestions!
Why join this choir?
Music is an enjoyable and powerful part of our lives. It connects us with the moments in our lives. It is there for us through tough times and also in our most joyous moments. When we listen to those special songs, we remember those moments. Singing with others brings us closer together, as we share our songs, and feel the great physical and social effects of singing.
Where
Hurstbridge Community Hub
50 Graysharps Road Hurstbridge
The choir will run using a hybrid delivery model - you can join online using Zoom if you cannot make it in person.
When: Fridays 1:30-3:30pm
Afternoon tea provided
For more information
Nick Murray (Registered Music Therapist) on 0406 485 791 or nicholaslukemurray@outlook.com.
Mudbrick Cafe
The Mudbrick Café is a local peer support group for people living with younger onset dementia and for people diagnosed with dementia or mild cognitive impairment, and their family/support person.
Come along for afternoon tea, mutual support, exchanging of stories, laughter, interesting activities and new friendships.
When: second and fourth Thursday of each month
Time: 1.30 - 3.00pm
Where: Diamond Valley Baptist Church, 309 Diamond Creek Road, Plenty
Phone: 0409 667 008
Cost: $5
RSVP: (including dietary needs) to Judy Toy on 0402 719 803
Support for a carer, friend or family member of a person living with dementia
Are you caring for someone living with dementia? There are supports for you in your caring role.
Carer Gateway – Carer Services
Carer Gateway is an Australian Government program providing free services and support for carers.
It supports carers with flexible, individualised help, including dementia advice through a Dementia Carer Consultant.
The Dementia Carer Consultant provides help with information about dementia, how to manage behaviour changes, planning for the future, and links to other dementia services.
They also support with navigating, coordinating and accessing services, counselling, respite and emergency respite and peer support.
To register call Carer Gateway on 1800 422 737.
Visit Carer Gateway for more information.
The Carers Collective
The Carers Collective is a newly formed peer support network for carers in Nillumbik. Join today to connect with others in caring roles who live locally.
Their vision is to create a space to come together, feel heard, reflect and learn new ways to improve mind, body and spirit, in a judgement free zone.
They hold free regular in-person and online meetings, planned special events, walks in nature and guest speakers throughout the year.
Find out more by visiting the Carers Collective website.
Information pack
Download a copy of the 'Dementia Information Pack’, which is a resource that is specially curated for people living with dementia in Nillumbik, and their family and carers.
The resource pack has been developed by Open Minds, Nillumbik’s Dementia-Friendly Alliance, and carers from the Memory Care Café in Hurstbridge.
There is a lot of information to take in, and there may be many decisions to make. The guide was developed by others going through this journey, who wanted to help people who are also going through a similar journey.
The Information Pack is also available hard copy - contact Council’s Positive Ageing Officer on 9433 3345 or positive.ageing@nillumbik.vic.gov.au to be sent a pack.
Download the Dementia Information Pack(PDF, 750KB)
Other resources to obtain or provide help
Positive Ageing Advisory Committee
Council’s Positive Ageing Advisory Committee has established a dementia-specific subcommittee.
To find out more about the Dementia Sub-committee and its work, and to get involved, contact Council’s Positive Ageing Officer on 9433 3345 or email positive.ageing@nillumbik.vic.gov.au.
Become a dementia friend
Small, everyday acts of support and understanding can make a big difference in the lives of people living with dementia, as well as their families and carers. Get involved by becoming a dementia friend.
Visit the Dementia Friendly website for more information.
Technology to help
Navigating dementia isn’t easy. A digital health app has been created by Perx Health, funded by the Department of Health and supported by Dementia Australia.
It provides a simple schedule and allows you to track appointments and earn rewards for completing daily health tasks.
Find out more at the Perx Health website.
Learn more about dementia
Throughout the year, Council and other community organisations host events and community education sessions designed to help you and your family, neighbours and friends learn more about dementia, memory concerns and support services available to you.
To be notified when upcoming community education sessions will be held, contact Positive Ageing on 9433 3345 or email positive.ageing@nillumbik.vic.gov.au.